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Peter Sustr
Who is Peter?
  • My Goal:
  • $1,000
  • Raised So Far:
  • $190
  • # of Donations:
  • 8
$190 of $1000 goal
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My name is Peter and everyday I live with Crohn’s disease.

Since the age of 8, I’ve lived with intense stomach pain.  It all started at a young age when I was still in elementary school, and it has continued into adulthood. Throughout my life I have been diagnosed with stomach ailments such as GIRD, IBD and now Crohn’s.  Pain is a constant companion in my life, which makes you live it differently than everyone else.  It makes me feel like a strange superhero that can spot a bathroom from a mile away.

Just over a year ago I decided to take control of my life and I started a new diet and exercise program, which has transformed me.  I am not, by any means, symptom-free, but the pain has subsided, the medication is gone and I am finally able to live my life. 

That’s why I’m hiking the 3,000 mile, 5-month long Continental Divide Trail (CDT) starting on April 20th.  It starts on the Mexican border and finishes on the Canadian border.  I am hiking the trail to live out a dream but also to show that for those of us that suffer from diseases such as Crohn’s and colitis, we can still live a normal, active life.   Nature will be my cure and therapy and I look forward to sharing it all with you, while raising awareness.  Follow me as I hike along the ‘Backbone of America’ on the CDT through my Facebook page: Couch2CDT, Twitter: @Couch2CDT, and my blog at:  CouchtoCDT.wordpress.com.

 

 

Nearly 1 in 200 people are affected by Crohn’s disease and ulcerative colitis (known as inflammatory bowel diseases or IBD). This number includes more than 1.4 million Americans. Sadly, the fastest growing patient population is children under the age of 18. These diseases are debilitating, highly misunderstood and misdiagnosed.

Together, we can make possible the many programs and services needed to improve the quality of life of IBD sufferers.

Your generous support gives hope to the many children and adults who are living with Crohn’s disease and ulcerative colitis.

CCFA's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. The Foundation seeks to achieve its mission in the following ways:

1.  Research: CCFA has funded over 1,500 grants to the most promising researchers in the field, and has invested over $168 million into cutting-edge research for treatments and cures.

2.   Education: CCFA's patient education programs seek to build the knowledge of patients beyond what they learn from doctor's office visits.  CCFA accomplishes this goal through many offerings: national webcasts, our

Information Resource Center (IRC) hotline, the Web sites www.ccfa.org and www.illbedetermined.org, patient brochures, and more. 

3.  Support: Over 10,000 people attended one of our 265 nationwide support groups in 2011.  Many chapters also offer the "Power of Two" program -- a person more experienced with IBD mentoring someone who is newly-diagnosed.  We also offer CCFA's Camp Oasis, a summer camp for children who have been diagnosed with Crohn's or colitis.  Learn more about our support programs at www.ccfa.org.

My Story
The Cause

My name is Peter and everyday I live with Crohn’s disease.

Since the age of 8, I’ve lived with intense stomach pain.  It all started at a young age when I was still in elementary school, and it has continued into adulthood. Throughout my life I have been diagnosed with stomach ailments such as GIRD, IBD and now Crohn’s.  Pain is a constant companion in my life, which makes you live it differently than everyone else.  It makes me feel like a strange superhero that can spot a bathroom from a mile away.

Just over a year ago I decided to take control of my life and I started a new diet and exercise program, which has transformed me.  I am not, by any means, symptom-free, but the pain has subsided, the medication is gone and I am finally able to live my life. 

That’s why I’m hiking the 3,000 mile, 5-month long Continental Divide Trail (CDT) starting on April 20th.  It starts on the Mexican border and finishes on the Canadian border.  I am hiking the trail to live out a dream but also to show that for those of us that suffer from diseases such as Crohn’s and colitis, we can still live a normal, active life.   Nature will be my cure and therapy and I look forward to sharing it all with you, while raising awareness.  Follow me as I hike along the ‘Backbone of America’ on the CDT through my Facebook page: Couch2CDT, Twitter: @Couch2CDT, and my blog at:  CouchtoCDT.wordpress.com.

 

 

Nearly 1 in 200 people are affected by Crohn’s disease and ulcerative colitis (known as inflammatory bowel diseases or IBD). This number includes more than 1.4 million Americans. Sadly, the fastest growing patient population is children under the age of 18. These diseases are debilitating, highly misunderstood and misdiagnosed.

Together, we can make possible the many programs and services needed to improve the quality of life of IBD sufferers.

Your generous support gives hope to the many children and adults who are living with Crohn’s disease and ulcerative colitis.

CCFA's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. The Foundation seeks to achieve its mission in the following ways:

1.  Research: CCFA has funded over 1,500 grants to the most promising researchers in the field, and has invested over $168 million into cutting-edge research for treatments and cures.

2.   Education: CCFA's patient education programs seek to build the knowledge of patients beyond what they learn from doctor's office visits.  CCFA accomplishes this goal through many offerings: national webcasts, our

Information Resource Center (IRC) hotline, the Web sites www.ccfa.org and www.illbedetermined.org, patient brochures, and more. 

3.  Support: Over 10,000 people attended one of our 265 nationwide support groups in 2011.  Many chapters also offer the "Power of Two" program -- a person more experienced with IBD mentoring someone who is newly-diagnosed.  We also offer CCFA's Camp Oasis, a summer camp for children who have been diagnosed with Crohn's or colitis.  Learn more about our support programs at www.ccfa.org.

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About

The Campaign:

Providing Hope, Inspiring Action

When the Crohn's and Colitis Foundation of America (CCFA) was founded in 1967, inflammatory b

The Organization:

The Crohn's & Colitis Foundation of America, Inc.

CCFA's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.

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